Resources
http://amputee-coalition.org/ Amputee Coalition of America: Their Mission: To reach out to people with limb loss and to empower them through education, support and advocacy.
http://www.helpinghandsgroup.org A support group located on the east coast, run by families of children with arm and hand differences.
http://www.child-amputee.net/index.htm Bill Baughn and his wife, Joyce, a bilateral below elbow amputee since age six, established I-CAN (International Child Amputee Network) and an Internet mailing list to provide information and support contacts to children with absent or underdeveloped limbs and their parents.
| This site is a continuation of the fine work of Peggy and Peter McLoughlin, who retired their super-kids.org website and newsletter in 2002. Our sincere hope is that through this online resource you will find the practical information as well as the emotional support to help make your journey into the world of limb differences easier than you may have initially imagined. Our goal is to provide a comprehensive resource to the families and friends of children with limb differences |
UpperEx.Com is dedicated solely to upper extremity amputees. The mission of this publication and web site is to provide information and resources relevant to all UE amputees, whether new or experienced, youth or adult, and to expand our network globally to include those from around the world.
|
This site is ENTIRELY in Swedish! However, look closely and you will see (you're going to have to dig around for the photo's) that it is an organization located in Sweden for people and families with limb differences. |
Related Reading
Children's Books
"The Making of My Special Hand: Madison's Story" by Jamee Riggio Heelan, 1998, Peachtree Publishers
"Harry and Willy and Carrothead" by Judith Caseley, 1991, Green Willow Books, New York
"Oliver's High Five" by Beverly Swerdlow Brown, 1998, Health Press
"Susan Laughs" by Jeanne Willis, 1999, Henry Holt and Company
"Howie Helps Himself" by Joan Fassler, 1975, Albert Whitman and Company
" Katy No-Pocket" by Emmy Payne, 1944, Houghton Mifflin Company
Limb Differences and Prosthetics Books
"Children with Limb Differences: A Handbook for Families - Ages birth to five years" National Limb Loss Information Center
"You're Not Alone" by John Sabolich and Scott Sabolich, 2001
"The Child With a Limb Deficiency" 1998, American Academy of Orthopaedic Surgeons
"Functional Restoration of Adults and Children with Upper Extremity Amputation" edited by Robert H. Meier and Diane J. Atkins, 2004, Memos Medical Publishing, Inc.
"Powered Upper Limb Protheses: Control, Implementation, and Clinical Application" 2004, Springer-Verlag
Television Shows
http://pbskids.org/mayaandmiguel/flash.html With humorous twists and turns, every episode of Maya & Miguel presents new adventures and double the fun for these 10-year-old twins. Featuring their family, friends and richly diverse neighborhood, each story revolves around Maya's well-intentioned meddling in the lives of her family and friends, always placing her in an interesting and often hilarious predicament. Maya and Miguel are driven by the idea that shared happiness is greater than personal gain. One of their friends, Andy, was born with an upper extremity limb difference. This website is interactive, and actually allows you to send the characters your questions. Andy's questions include Q&A about his arm.
